Russell’s latest session was the third milestone I’ve had the joy of photographing, and it’s incredible to see how much he’s grown. Now 8 months old, he’s sitting up all on his own—steady, proud, and full of personality. These milestone sessions feel like pages in a visual journal, sweetly documenting each chapter of a child’s journey.
I always invite families to bring along items that hold meaning for them, and Russell’s parents brought something truly special: a cherished teddy bear with a photo of his big brother, Landon.
Landon was born with Gaucher disease type 2, a rare and devastating condition for which there is no cure. Sadly, after a brave and heartbreaking fight Landon passed away at just 2 years old. I had the profound honor of photographing sweet Landon during his life and his memory was deeply present during Russell’s session. It was a reminder that with every milestone and each year that passes, we carry those we love with us.
Though his time here was brief, Landon's impact continues to be profound. In his memory, his parents are channeling their love into a foundation created to honor his life and legacy.
They remain sincerely thankful for the compassionate care provided by Dr. Goker Alpan of the Lysosomal and Rare Disorders Research and Treatment Center (LDRTC) and the teams at Goryeb Children’s Hospital and CHOP.
To learn more about Gaucher disease—and to support ongoing research and families affected—please visit gaucherdisease.org. You can also follow Landon’s touching journey on Instagram: @Landons__Journey
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